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Welcome to the New York State Cancer Consortium!

The New York State Cancer Consortium (NYSCC) is a network of individuals and organizations that collaborate to address the cancer burden in New York State. The NYSCC and its members are guided by the strategic plan, the NYS Comprehensive Cancer Control Plan 2012-2017, which outlines objectives and suggested strategies to reduce the burden of cancer in NYS. We hope you use this site to learn more about cancer in New York and to further your own organization's efforts to decrease the cancer burden for all New Yorkers. To learn more about the NYSCC and the benefits of membership in the NYSCC click here.

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Spotlight On!
Recent Resources
Member Opportunities
"Putting the Plan into Action" Presentations
Dashboard and NYSCC Member Program Directory

Spotlight On!

National Cancer Survivorship Research Center

The National Cancer Survivorship Research Center is a collaboration between the American Cancer Society and the George Washington University Cancer Institute funded by the Centers for Disease Control.  Its goal is to shape the future of cancer survivorship care and improve the quality of life of cancer survivors as they transition from treatment to recovery.  In year one, the focus was on creating action plans in four areas specific to cancer survivorship: Quality of Life: Information Deliver; Quality of Life: Programs and Navigation; Systems, Policy and Practice: Clinical Survivorship Care, and Policy and Advocacy.  By clicking on the link, you will find recommendations for all four areas, the Center’s progress in years two and three, and tools for Cancer Survivors and Caregivers, Health Care Professionals and the Policy and Advocacy Community.

View previous member stories of the month by clicking here.

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Recent Resources

Modifiable Press Release for National Cancer Survivors' Day: June 7th is National Cancer Survivors' Day. Click on the link to access a modifiable press release and help your organization support cancer survivors.

Tools for Health Care Professionals: Cancer survivorship care tools and resources for providers, organizations and communities provided by the National Cancer Survivorship Research Center. This includes access to an e-learning series for primary care providers, a guide detailing indicators and outcome measures used to monitor success of survivorship programs, a tool to help health care professionals talk to survivors about resources available, and more.

Tools for the Policy and Advocacy Community:  Cancer survivorship care resources for policy makers, decision-makers and cancer survivor advocates.  This includes a white paper to educate policy makers on cancer survivorship issues and priority areas for improving survivorship care and Cancer Treatment and Survivorship Facts and Figures.

ASCO Cancer Survivorship Compendium:  This has been developed to serve as a repository of tools and resources to enable oncology providers to implement or improve survivorship care within their practices.  Click on the link to view more.

The Childhood Cancer Survivor Study (CCSS):  The CCSS is a component of the Long Term Follow Up Study begun in 1994 and is a collaborative, multi-institutional study funded by a grant from the National Cancer Institute and funds from ALSAC (St. Jude fundraising organization).  The CCSS is composed of individuals who survived five or more years after diagnosis for cancer, leukemia, tumor, or similar illness diagnosed during childhood or adolescence.  Recruitment is currently underway for 15,000 survivors of childhood cancer diagnosed between 1987 and 1999 and an additional 4,000 siblings of survivors to serve as a comparison group. Click on the link to view more and to access data tables from the study.

Cancer Survivorship in Primary Care:  This is a one-stop repository for primary care providers to quickly access resources for medical information and clinical guidance.  This site was funded by the National Cancer Institute-funded Cancer Research Network Cancer Communication Research Center.

Information for Action Report on Colorectal Cancer Screening among NYS Adults: This report summarizes data from the 2012 Behavioral Risk Factor Surveillance System (BRFSS).  According to the report, nearly one-quarter of adults aged 50-75, an estimated 1.2 million New Yorkers, have never been screened for colorectal cancer.  Click on the link to see the report.

NYS Cancer Prevention Summit Live Recording:  A live recording of the Summit, held in NYC on May 20th is now available by clicking on the link.

Affordable Care Act Clarification:  The U.S. Department of Health and Human Services has issued guidance clarifying coverage consumers are entitled to under the Affordable Care Act.  This guidance indicated that issuers cannot impose cost-sharing for anesthesia services performed in connection with preventive colonoscopies. Click on the link to view more.

New York State Comprehensive Cancer Control Dashboard. This interactive, web-based Dashboard will be used to monitor progress of cancer prevention and control efforts in NYS and to guide organizations working toward cancer prevention and control to areas most in need of intervention. The Dashboard provides information on twenty-four of the health promotion, cancer prevention and early detection indicators identified in the New York State Comprehensive Cancer Control Plan, 2012-2017.

Send your resources for listing (recent reports, list of area resources, etc.).

To view the archived "Recent Resources", click here.

Member Opportunities

Virtual Group Study: The American Cancer Society and Memorial Sloan Kettering Cancer Center are studying innovative ways to help breast cancer survivors find support and a new sense of meaning in their lives. If you live in NYS and would like to connect with other breast cancer survivors to share your experience, click on the link or email aimstudy@mskcc.org.

NYSCC Member Program Directory: If your program is not listed, click on the link to provide information. .

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